10 Years On Propecia, Pictures, Blood Tests, My Story And Questions

memoryboy

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Finally got my blood test in today. I did extended tests, most that Propeciahelp.com recommends. Couldn’t do all cause just they don’t do all in my country. But most. Will have some results on Thursday. Some results will take longer as they will actually be sent to Germany. Crazy.
And will have an endocrinolist appointment on Thursday. To check out my blood test and possible gyno. And andrologist appointment on Friday.

Wish me luck.

That andrologist is actually the most famous and respected in my country. Who practically started the field here. Very hard/rare and expensive to get appointment with. So far he has preached Propecia is safe and also during my last appointment fully concentrated to my prostatitis and seemed to deny anything persistently bad can happen from Propecia.

Cannot deny though that my estrogen was high and after quitting the measurements were at least briefly all over the place. My emotions have also been all over the place the past days.

I’m going from thoughts cursing the day I ever took the drug to thoughts whether I should start taking it again.
The thing is I cannot be really connect all this to finasteride, I’m not a doctor.

Less ejaculatory volume – yes I had. The elevated estro and some alarming things with my chest and nipples while looking back yes. (Sometimes) weaker erections could also be from other factors. I know sometimes I was able to go like crazy and got complimented a lot. So a lot of it could be psychological.

I’m also aware of the possibility of NOCEBO effect.
My (hopefully) temporary infertility and some further complications could be from prostatitis.

And could be that prostatitis has nothing or little to do with finasteride.

I started a relationship with a new lady last summer and that was around the time I was diagnosed with prostatitis, just a few months later. I went to the andrologist in unrelated question and got this diagnosis Symptoms followed shortly. I read it could happen that a man can get it from a woman when having unprotected sex, when a woman has certain bacteria.

Oh man.

One thing seems to be for sure. I’m loosing my hair in my hairline in accelerated fashion.
Right now I just have to go through my hair with hand and have a hand full or hair.
Just in the front not crown (yet). In this pace, all my hairline is gone in no time. The itching is back too.

Really considering, whether I should go back on the drug or not. Been off it for around 2+ months. The other me feels crazy that I even consider it.

Not until the blood tests of course. I also will know about my sperm test.
But the prostatitis is still going on on fire, so that doesn’t give full picture on my sperm quality with or without finasteride. I'm definitely quite young to have prostatitis.

This is really a vicious choice we have put going through as a man. Loose all your hair or be faced with these possible side effects or uncertainty whether they could come and when and whether they're resolvable or persistent. Risky stuff.

Propecia definitely worked on my hair, that seems to be very sure.

I didn’t visit any hair loss site for maybe 7 years. Now I’m back here desperate and all I can do is watch other people’s hairlines on the street or magazines. f*** this.

I have never had short hair in my life. My hair has always been a big part of my identity. And people think of me always with big hair and nice haircuts. How do you go from here to baldness in a few months?

I'm torn whether to say f*** it and shave everything or to keep on fighting.

I'm 34 right now. The people I meet say I look like around 26-27 and are always suprised when they hear my age. I know it's not all in my hair but I reckon it's a lot got to do with it. Hard to give that up.

I also don't have a family or wife, so I'm still playing the field and need to keep up my sexual market value.
Then again, I also need to be able to have and enjoy great sex. Without that, the hair is pointless. A vicious cycle and choice for sure. :D

I could consider transplant. It's not cheap for me but I have the money. But I read it's mostly recommended with Propecia. To avoid shock loss and further hairloss behind my new hairline.

I wish I had blood tests done annually while on Propecia. No doctor who were prescribing me them never recommended it nor warned any sides could come so many years later.
 
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michel sapin

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first bro don't go on propecia help . Secondly all the sides like low sperm count and sexual dysfuction are reversible . finasteride is not a suicide inhibitor of DHT ;
depending of your body ability , it is a matter of a few month , you will recover all your hormone pre baseline .
The only side which is irreversible after a few time is gynecomastia .
the thing you have to know is did you have those chest problem , before starting propecia ? this is the main question . if at baseline you had those chest problem i would keep taking propecia .
 

memoryboy

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Yeah, I'm aware this is very biased site. And one can get NOCEBO effect from reading that.
Not that it's not true probably for some unlucky individuals but any medication can go haywire for a small %.

BUT
I didn't even think about it but the bigger question also is, should a man take anti-androgens forever...
Quite a few people say it's not exactly clear what lowering your DHT for so long and messing with your 5-AR-II inhibitors long term (years and years) do exactly.

I don't even know when the chest stuff started. I've taken the drug for so long. And after a little while I just forgot about it. I just took the drug and didn't think of it. This side effect wasn't in the side effect text when I started taking it and for years it wasn't. No doctors warned me of this. Now I see it's been added. But since I didn't have problems elsewhere that I knew of, I didn't read each package every month. I though I knew what it's says. I couldn't even connect the small lumps in my areolas and the squeezed occasional liquid discharge from them to Propecia or gyno or that it's anything abnormal. I mean, this might seem silly but I haven't touched other mans chest and nipples before. Didn't know this should be alarming. My nipples are slightly tender too though.

And my chest doesn't really puff out too much. Now when I really look at it, maybe it has some effect. I just thought I have big chest muscles. LOL. As I said, I'm with muscular build with bigger shoulders and chest even if I don't work out for a while. And I'm quite fit.

Anyway, I'l have that checked out in a few days.

When I read the Finasteride package now, the possible chest gland enlargement is added in the unknown % of people. And also persistent possible ED has been added for unknown % of people.

And another crazy fact. They don't sell any more 1mg finasteride in my country. Just dissapeard from all pharmacies in November.
1mg official Propecia now needs special clearance, a higher status recipe that only a doctors commitee can give out.
1mg generic doesn't need it but it's off the market.
5mg still exist. but that's officially meant for using by older guys to treat enlarged prostate.

Is this alarming that they have made these actions?

My country is close to Sweden, so they might be following suite.

Another thing. My eyesight went worse while on Finasteride. A little -1,5 minus + silinder.
Got C-TEN (a version of LASIC) in 2011 and now it's gone bad again.
Will have it checked out today to see what's up. Also dry eyes (to the point that I cannot wear contacts) and a bit blurry sometimes. can this be a connection?

I read that Finasteride is associated with intraoperative floppy iris syndrome and cataract formation.
 
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donsf448

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There are many studies and further validated studies that show 1 mg finasteride daily has little to no effect on sperm. For people who are already having fertility problems, their sperm count and motility increases after cessation of finasteride. To summarize, don't panic. A low sperm count can be caused by many things, but stopping finasteride will increase your sperm count again in the future. Based on the amount of stress this is causing you, I would just stop using it. I think women will admire the fact that you didn't start losing your hair until your mid 30s. Just embrace it!

Good luck.
 

maxrebo

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Whoa that's a lot of stuff op, hoping things get better for you. I've been on finasteride for 4.5 years now. Kind of getting paranoid about sides. I'm not sure though, I sort of have depression I've started taking meds for. I've always struggled with depression though. also started working out and losing weight, I was always a little chubby, up until recently, but I notice my chest still pops out after all the weight loss(along with small love handles and lowerbackfat). I suspect mild gynecomastia, but I think I had that since I was young because I used to always wear sweatshirts to hide my chest in school. Like I said, i was chubby, not fat, but the amount of fat in my chest seemed unusually high for someone that was just chubby...so now I'm thinking about getting surgery to treat that, but I worry if gynecomastia is surgically removed and I stay on finasteride, will the gyne come back? Alll the stuff you're going through is making me think. I have to start getting some bloodwork done. I started finasteride at 23 and now I'm 27 I only noticed sexual side effects: my erection weren't as strong and the absence of morning wood, but I still had sex.
 

memoryboy

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Got my latest bloodwork done. Still waiting for some numbers.
They don't measure DHT in my country, so they actually have to send to Germany to get measured. So it takes 7 days.

Met up with endocrinologist. Was a quite unpleasant guy to begin with. But he didn't think there's anything wrong with my hormones, and all are in range.

My liver numbers were high but this cannot be finasteride. I have the numbers from a year ago, and they were normal. I'll go and make a 9 day liver detox.

Met up with my original andrologists/urologists as well. He said all my numbers are alright as well.

I still have prostatitis and he said to concentrate to get rid of that. He prescribed me prostate massage and some milder antibiotics regime.

Maybe my prostatitis really had nothing to do with finasteride. But I read somewhere that high estrogen in young males could potentially cause prostatitis. And my estrogen was high probably because finasteride. Not sure.

Regret I didn't do the blood tests before starting finasteride 10 years ago.

My sperm quality was the same bad as in the fall, maybe slightly worse. But the measurement in the winter with very bad almost infertile results was done in another place, and was supposedly wrong.

He checked me and didn't think I have gyno. Coudn't detect any breast tissue by hand. Doctor asked to go get a mammography if I wanted to. I can get it done in the end of the month if I choose so.

I kind of regret ever having read all the Propeciahelp stuff and kind of regret ever had come of finasteride. After 3 months off it, I'm shedding like crazy and loosing hairline day by day. Even going though my hair by hand, tons of hair is coming off. Not no mention showering or combing. I'm actually considering to start taking it again. Should I? How long I could expect to stop shedding? The big shedding has been going on for a week o so. Maybe try 0,5mg a day dose at first? I was on that one for the last 3 months before quitting. Could I expect growing back that I've lost in this shed? Considering that I grew it back the last time I started using it.
Any supplement to take to keep my androgen/estrogen ratio in check along with finasteride?

I miss the 8 years I didn't think about my hair loss and never visited these forums :)))

I've taken a month break before a few times, this was the first 3 month break. I think it's safe to say, finasteride was keeping all my hair.

Being off Propecia, my morning erections are back though.
Also sperm is more white and less transparent.
And I'm starting to think a lot of my ED was in my head.
My doctor also said to me I should maybe see a psychologist.
I'm still using Cialis sometimes though, it's just rock hard with that for a long time.

It's often like this, that you see one little side effect that could or could not have to do with finasteride and you can blew it all up in our head reading all the horror stories that probably feed on from each other. Not to say some of it is true but it's millions of people taking the drug.

My current tests. 3 months off Propecia.
Testestorone seems pretty low to me though and estrogen pretty high (dropped a little but still high).
Even though my doctor said he doesn't see any problem.

Anyway, testestorone is a lot lower than it was on Propecia (then it was 22.49) and even lower than 3 months ago after quitting (around 17). Could quitting of finasteride has caused this?

My doctor said it's in range and alright. And it's fluctuating and that's normal.
It's a very trustworthy doctor and the leading andrologist in my county. But also, he is the one that is prescribing finasteride to hundreds of patients, so I guess it would be hard to admit any persistent problems as he has preached the drug is safe to use.

Prolactin is alright (high Prolactin would be the cause of gyno).

Testestorone 14.4 nmol/l...................8-29 nmol/l
Oestradiol 118.7 pmol/ll..................<146 pmol/l
SHBG 22 nmol/l
TSH 3.33 mlU/l...........................0,40-4,00
Prolactin: 192 mlU/l....................53-360
Progesterone (P4): 1.72 nmol/l.............<4.11
FSH 8,1 IU/l..........................1,4-18,1
LH 4,37 IU/l..........................1,5-9,3
S-DHEAS 8,3........................0,9-15,4
Cortisol 331 nmol/l................138-690
FT4 15,08 pmol/l....................11,5-22,7
FT3 5,60 pmol/l.......................3,5-6,5

Androgen/Estrogan ratio......still waiting for the result
DHT......still waiting for the result
Free testestorone......still waiting for the result
Bioavailable Testosterone......still waiting for the result
3-alpha-diol G 5AR-II activity......still waiting for the result

If anyone experienced care to elaborate on my results, I'd be happy to hear that! Thanks!

The weird thing is. Propecia and generic are still not available in any pharmacies in my country. For more than 3 months. Could be even more as I had a little supply in store. My inital quitting was because I couldn't get the drug any more... And noone seems to know why.
 
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ahmed wolf

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Got my latest bloodwork done. Still waiting for some numbers.
They don't measure DHT in my country, so they actually have to send to Germany to get measured. So it takes 7 days.

Met up with endocrinologist. Was a quite unpleasant guy to begin with. But he didn't think there's anything wrong with my hormones, and all are in range.

My liver numbers were high but this cannot be finasteride. I have the numbers from a year ago, and they were normal. I'll go and make a 9 day liver detox.

Met up with my original andrologists/urologists as well. He said all my numbers are alright as well.

I still have prostatitis and he said to concentrate to get rid of that. He prescribed me prostate massage and some milder antibiotics regime.

Maybe my prostatitis really had nothing to do with finasteride. But I read somewhere that high estrogen in young males could potentially cause prostatitis. And my estrogen was high probably because finasteride. Not sure.

Regret I didn't do the blood tests before starting finasteride 10 years ago.

My sperm quality was the same bad as in the fall, maybe slightly worse. But the measurement in the winter with very bad almost infertile results was done in another place, and was supposedly wrong.

He checked me and didn't think I have gyno. Coudn't detect any breast tissue by hand. Doctor asked to go get a mammography if I wanted to. I can get it done in the end of the month if I choose so.

I kind of regret ever had to read all the Propeciahelp stuff and kind of regret ever had come of finasteride. After 3 months off it, I'm shedding like crazy and loosing hairline day by day. Even going though my hair by hand, tons of hair is coming off. Not no mention showering or combing. I'm actually considering to start taking it again. Should I? How long I could expect to stop shedding? The big shedding has been going on for a week o so. Maybe try 0,5mg a day dose at first? I was on that one for the last 3 months before quitting. Could I expect I could grow back that I've lost in this shed? Considering that I grew it back the last time I started using it.
Any supplement to take to keep my androgen/estrogen ratio in check along with finasteride?

I miss the 8 years I didn't think about my hairloss and never visited these forums :)))

I've taken a month break before a few times, this was the first 3 month break. I think it's safe to say, finasteride was keeping all my hair.

Being off Propecia, my morning erections are back though.
And I'm starting to think a lot of my ED was in my head.
My doctor also said to me I should maybe see a psychologist.
I'm still using Cialis sometimes though, it's just rock hard with that for a long time.

It's often like this, that you see one little side effect that could or could not have to do with finasteride and you can blew it all up in our head reading all the horror stories that probably feed on from each other. Not to say some of it is true but it's millions of people taking the drug.

My current tests. 3 months off Propecia.
Testestorone seems pretty low to me though and estrogen pretty high (dropped a little but still high).
Even though my doctor said he doesn't see any problem.

Anyway, testestorone is a lot lower than it was on Propecia (then it was 22.49) and even lower than 3 months ago after quitting. Could quitting of finasteride has caused this?

My doctor said it's in range and alright. And it's fluctuating and that's normal.

Prolactin is alright (high Prolactin would be the cause of gyno).

Testestorone 14.4 nmol/l...................8-29 nmol/l
Oestradiol 118.7 pmol/ll..................<146 pmol/l
SHBG 22 nmol/l
TSH 3.33 mlU/l...........................0,40-4,00
Prolactin: 192 mlU/l....................53-360
Progesterone (P4): 1.72 nmol/l.............<4.11
FSH 8,1 IU/l..........................1,4-18,1
LH 4,37 IU/l..........................1,5-9,3
S-DHEAS 8,3........................0,9-15,4
Cortisol 331 nmol/l................138-690
FT4 15,08 pmol/l....................11,5-22,7
FT3 5,60 pmol/l.......................3,5-6,5

Androgen/Estrogan ratio......still wating for the result
DHT......still wating for the result
Free testestorone......still wating for the result
Bioavailable Testosterone......still wating for the result
3-alpha-diol G 5AR-II activity......still wating for the result

The weird thing is. Propecia and generic are still not available in any pharmacies in my country. For more than 3 months. Could be even more as I had a little supply in store. My inital quitting was because I couldn't get the drug any more... And noone seems to know why.
u know what stories that fucked me up and but but me in a loop is 1-3 pills stories
 

ahmed wolf

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sorry, what do you mean? @ahmed wolf
sorry for the wrong writting.
i took finasteride for 3 days got sides stopped they could be mental or real one thing i am sure about is I wasn't happy taking it in the first place any way after stopping i was good but keep spending time in every hairloss fourm reading about the sides it fucked me more and but me in a depressed mood for 3 and half months now and its all thanks to the stories ppl took finasteride for less than a week still haveing sides or this mysterious pfs but i come to my sense now after spending time on another fourm reading posts fron ppl took finasteride one time can't have deep sleep for more than a year hahah or took finasteride one time have shrinked dick and others guy swears he got all kind of sexual sides effects that comes from a transsexual regime frim using minoxidil foum for 2 weeks
so i told to myself i need to get my *** off these looneys and i did ans starting to feel ok now
 

memoryboy

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yeah, the NOCEBO effect can be strong on us. Especially if it's messing with sexual organs and functions. It's so important for us as males.
 

memoryboy

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Damn, I'm shedding like crazy in the front and temples and receding hard. Really having different looks already in matter of days.

If I start finasteride again, how soon I could expect the shedding to stop? But I've lost so much already that if I don't grow it back then I would definitely need to get an transplant.

I've read that this DHT shock shedding after and starting Propecia should stabilize though and some of it could grow back.

The shedding is so depressing that I consider shaving it at least for the time being.

I've never had shaved head, so I'm a bit scared how it would suit me.
 

memoryboy

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Started finasteride again a few weeks ago. Been trying to ween back on.

Actually got the test back from mid-March and according to that DHT was still low. That's 2+ months after quitting.
So it feels strange that I'm shedding. Is it minoxidil that I started? Is it telogen because of hormonal shift I experienced a few months ago.

Now I'm shedding from all over even in the back and sides where there should be no AA.
But definitely shedding more on top, hairline and vertex. The hair coming out are both thin and thick.

The itch is back too.

Now using minoxidil, nizoral, revivogen and back on finasteride with more infrequent doze. But weening back.
Been thinking to stick with 0,5 EOD.

Lost quite a bit from hairline, the rest is still okay-ish.
 

memoryboy

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OK. Got mammograph done today.

They said it's not gyno really but yeah, both breast have some prominent breast gland tissue. left ca 1,2x0,6cm and right ca 1x0,2cm.

What to think of it? "small gyno" ?
Wasn't gyno like super rare side effect even with people taking 5mg daily?

I've never had mammography done, so I have no idea if I had this before or after taking finasteride.
Like I said, I've been on it for so long. I kind of remember having some discharge before finasteride, but I cannot be sure. That was more than 10 years ago.

Wasn't there some evidence that if one gets a gyno, it should happen a few months after starting not years later?
Could it be that I had this little enlargement at first and that as that and it that didn't go further?

And I've always had some chest muscles, so not sure what is what. One cannot really tell anything from looking at me.

I had another blood test done today too. Waiting for those results.

What was weird was that 3 months after quitting (or taking a break) from finasteride my DHT was still low and below range.
But I'm shedding hair like crazy. Weird that I'm shedding then.

Could it be that DHT went up after quitting (I didn't have DHT measurements right after quitting just T. what went down).
and then it went down again. And I'm shedding from the hormonal shift aftermatch as telogen?

My andrologist/urologist says my prostatitis is bacterial.
But I'm also worried it might be caused my long term high estrogen.

6 months after diagnosis later I'm still battling with prostatitis. Age 34. Not fun!

I'm also thinking that my partial ED could be p**rn related. Or partially p**rn related. Trying to cut that sh*t out to rule that out.

I might go and see famous dr. Goldstein in San Diego next month to get better perpective.
 
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michel sapin

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the main point is did you have baseline pics of your breast , nipples ( i know that sounds weird ).
Because the normal size is 0,5 cm for breast tissue in men . so maybe tou had those at baseline and propecia slightly increase it .
I got small puffy nipples in my right breast after 6 month on 5 mg finasteride ( 0,4 cm at the mammgraphy) .
You said that you got nipples discharge before propecia ?
Man you have to know if you had those befoire , or if this is the fault of propecia .
 

memoryboy

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I don't have baseline chest/breast/nipples photos. Haha, yeah, no worries. It's all super weird we have to deal with here, man.
If I would have told my past self (even a year ago), I have to deal with such sh*t, I would think I'm crazy. Rolling eyeballs.

But I guess my case can show some complications can come at any time when you're on drug or after quitting or taking a break from the drug. Because your own hormonal levels may change from some outside circumstances. Even how fit you are or how much body fat % or how stressed out and etc. And how much your T concerts into E, can be affected from that. And then the body cannot deal with low DHT so well any more that it did in the past and some new side effects may occur. Just my theory now. I believe I might have elevated E for years. I just didn't know it.

Looking back and being more informed now. If one is on finasteride, he should get annual blood tests for sure or even more often when anything seems off.

When I started with finasteride 10 years ago, no doctor, no website or no drug side effect paper was listing possible gyno as a possible side effect.

I guess I can find some naked photo of myself of course :) But it's hard to tell as probably my body fat % and photo angle and etc are different.
I also weight a bit more now, so it's really hard to tell.

I'm 99% sure though this discharge and breast tissue enlargement occurred sometime when I was on finasteride. I just didn't notice the enlargement (it's slight enlargement) and didn't know the discharge can be anything abnormal. It doesn't discharge itself only when squeezed and not from nipple itself but from little pumps around it and only a tiny drop.

The mammography said "slight prominent breast glad tissue on both breasts"

Slightly more discharge is coming out from left nipple, there also the tissue is a bit bigger.

After I quit finasteride, then a whole little stream came out. (not any more). Then I started to be alarmed.
Actually my estrogen went up for a brief time after quitting, so that's why probably. I have numbers to show that.
 
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g.i joey

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It would be interesting to see what happened if you'd restart the drug and taper off. I think most people will benefit from taperingnoff the drug over a period of weeks and in your case even months after a decade of being in the drug.

I think a lot of your sides can def be attributed to finasteride, I take it myself but it's just too much of a coincidence to have prostatitis and gyno and it not being related to finasteride. Have you always had gyno and just neglected it or did it recently appear?
 

memoryboy

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For the sake of records, here's my recent update.

It's now 5 months since my break (late December) from finasteride.
I started shedding and it really accelerated in March.
I freaked out and started to introduce finasteride again back into my system.
Recently got into 0,5mg every day.

Also been trying Revivogen and Minoxidil but inconsistently.

Still was shedding hard until suddenly about 3 weeks ago my shedding just stopped literally overnight. Just suddenly, I didn't shed at all. Zero hair was coming out. Even while aggressively pulling my hair nothing was coming out any more. Was thinking it's the finasteride working again and then started to take 0,5mg every day, or almost every day. Up until that point I took 0,5mg around 3 times a week.

Now yesterday, I suddenly started to shed a bit again, although not as aggressively as before...

Not sure what is going on. I started to shed really hard, felt I was loosing it all. Then it stopped literally overnight for 3 weeks. Now it seems to have started again a bit. Is it Telogen Effluvium? Something else, many things together?

I now got slightly puffy nipples maybe. Mammography said it's not gyno but slightly prominent breast tissue.
I've put on a little more weight too, it's hard to tell how bad it is. Noone has really noticed or mentioned anything. Even my girlfriend.

I don't want the pseudo-gyno get worse and I gringe every time I take the pill again. But extreme shedding made me really depressed after having almost all my hair for 10 years, so I started taking it again.

The department in my prostatitis feels better but I will see doctor in a few weeks to see if it really has cleared up or not.

After quitting p**rn, the department in erections/libido has been working fine I think. Although I've had less control when to ejaculate.
 

Bagels

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In terms of hair, You look like u thickend behind the line and maintained your density perfectly so a great starting point. Do some more research on the current oral and topicals people are trying. oral seti could be an option if you're a good responder at maintaining and topical RU.

In terms of recover, listen to you doctor and do a bit of searching, plenty of people have recovered from finasteride sides with a good vitamin/diet regimen plus workout etc. People take things to increase androgens and lower est like Taurine, maca root, DIM, etc. I think you'll be fine long term, just get on a new hair regimen and hope the sperm quality gets better. Please come back and report on that one, many of us on finasteride have seen sperm stories and want to know if we can still have kids later. GL
 
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