Hair Loss: Why We're Often Frustrated

[Agustin Araujo]

Hi everyone, from my experience, I want to talk about why we're often frustrated about our hair loss in this post.

We're here on this forum obviously because we're sufferers of alopecia. We're here to talk about treatments, help each other out, and look forward to a cure to put an end to this condition.

It is extremely difficult for us that we're living in a time where we are constantly judged by who we are by the way we look to others. There are too many people who do not suffer from any alopecia that have any understanding of what it's like for those who do suffer from it.

We're often told by those who are not sufferers of alopecia offensive statements such as these:

-Get over it and move on.
-Quit obsessing over it.
-Just shave it off it's not a big deal.
-You'll be fine, no one will notice.
-No one's going to judge you by your hair.

Statements like these are simply unhelpful and untrue. If anything, statements like these have kept us from finding a cure and better treatment options for alopecia in children, men, women, and people of all types.

We're often frustrated because we have a loss of control, our hair loss. Our head hair is a form of expression, a form of identity, a completely natural form of beauty. We want our hair back to our previous state free from any alopecia because we want to look our best and have our complete selves back. Wanting that is not being vain in any way, but is part of being completely normal, is part about caring and having respect for your self.

We're often frustrated because if our hair loss is apparent, none alopecia sufferers look at us as individuals who don't take care of our selves and are frowned upon, but when we try to overcome our hair loss, then we're looked at as vain.

And that is my experience. Feel free to share your experience.

 

[Fena2000]

Hi everyone, from my experience, I want to talk about why we're often frustrated about our hair loss in this post.

We're here on this forum obviously because we're sufferers of alopecia. We're here to talk about treatments, help each other out, and look forward to a cure to put an end to this condition.

It is extremely difficult for us that we're living in a time where we are constantly judged by who we are by the way we look to others. There are too many people who do not suffer from any alopecia that have any understanding of what it's like for those who do suffer from it.

We're often told by those who are not sufferers of alopecia offensive statements such as these:

-Get over it and move on.
-Quit obsessing over it.
-Just shave it off it's not a big deal.
-You'll be fine, no one will notice.
-No one's going to judge you by your hair.

Statements like these are simply unhelpful and untrue. If anything, statements like these have kept us from finding a cure and better treatment options for alopecia in children, men, women, and people of all types.

We're often frustrated because we have a loss of control, our hair loss. Our head hair is a form of expression, a form of identity, a completely natural form of beauty. We want our hair back to our previous state free from any alopecia because we want to look our best and have our complete selves back. Wanting that is not being vain in any way, but is part of being completely normal, is part about caring and having respect for your self.

We're often frustrated because if our hair loss is apparent, none alopecia sufferers look at us as individuals who don't take care of our selves and are frowned upon, but when we try to overcome our hair loss, then we're looked at as vain.

And that is my experience. Feel free to share your experience.

since I started losing my hair, I've been losing my personality. I used to be the funny girl , trying to make people laugh, help people who ever needed support... Now I'm hiding, and I have 1 good friend who really supports me and tries to drag the real me out of the black hole. It's so funny how people disappear out of your life , once you need their support the most.
I guess there will be a day I can accept this, I don't know, but I'm far away from that right now. I know how cruel the world is, and I don't think I'm able to deal with it.
It's so hard, I used to have thick beautiful hair, even got complimented about my hair . Now it's gone, I feel so unattractive.
I keep telling people, I'm not vain, I just want to be normal, like everyone else.
As a little girl I used to have nightmares about losing my hair, I would wake up and think, oh it was just a dream, thank god. Now it's the opposite, I have dreams about having hair, then I wake up and look in the mirror, and think ugh it's reality.

- - - Updated - - -

Hi everyone, from my experience, I want to talk about why we're often frustrated about our hair loss in this post.

We're here on this forum obviously because we're sufferers of alopecia. We're here to talk about treatments, help each other out, and look forward to a cure to put an end to this condition.

It is extremely difficult for us that we're living in a time where we are constantly judged by who we are by the way we look to others. There are too many people who do not suffer from any alopecia that have any understanding of what it's like for those who do suffer from it.

We're often told by those who are not sufferers of alopecia offensive statements such as these:

-Get over it and move on.
-Quit obsessing over it.
-Just shave it off it's not a big deal.
-You'll be fine, no one will notice.
-No one's going to judge you by your hair.

Statements like these are simply unhelpful and untrue. If anything, statements like these have kept us from finding a cure and better treatment options for alopecia in children, men, women, and people of all types.

We're often frustrated because we have a loss of control, our hair loss. Our head hair is a form of expression, a form of identity, a completely natural form of beauty. We want our hair back to our previous state free from any alopecia because we want to look our best and have our complete selves back. Wanting that is not being vain in any way, but is part of being completely normal, is part about caring and having respect for your self.

We're often frustrated because if our hair loss is apparent, none alopecia sufferers look at us as individuals who don't take care of our selves and are frowned upon, but when we try to overcome our hair loss, then we're looked at as vain.

And that is my experience. Feel free to share your experience.

since I started losing my hair, I've been losing my personality. I used to be the funny girl , trying to make people laugh, help people who ever needed support... Now I'm hiding, and I have 1 good friend who really supports me and tries to drag the real me out of the black hole. It's so funny how people disappear out of your life , once you need their support the most.
I guess there will be a day I can accept this, I don't know, but I'm far away from that right now. I know how cruel the world is, and I don't think I'm able to deal with it.
It's so hard, I used to have thick beautiful hair, even got complimented about my hair . Now it's gone, I feel so unattractive.
I keep telling people, I'm not vain, I just want to be normal, like everyone else.
As a little girl I used to have nightmares about losing my hair, I would wake up and think, oh it was just a dream, thank god. Now it's the opposite, I have dreams about having hair, then I wake up and look in the mirror, and think ugh it's reality.

Im not sure about this, but I think women with Androgenetic Alopecia seem to be dealing with a lot of other health issues. I hope I'm wrong, because looking in my future is already pretty depressing.

sorry about the whining! I can't do it in real life, it's nice to write it all out, it's like therapy.
Oh that's another advice I got, maybe you should talk to a psychiatrist, he can help you deal with it better. Yeah, if he gives me my hair back, he will.

 

[Agustin Araujo]

since I started losing my hair, I've been losing my personality. I used to be the funny girl , trying to make people laugh, help people who ever needed support... Now I'm hiding, and I have 1 good friend who really supports me and tries to drag the real me out of the black hole. It's so funny how people disappear out of your life , once you need their support the most.
I guess there will be a day I can accept this, I don't know, but I'm far away from that right now. I know how cruel the world is, and I don't think I'm able to deal with it.
It's so hard, I used to have thick beautiful hair, even got complimented about my hair . Now it's gone, I feel so unattractive.
I keep telling people, I'm not vain, I just want to be normal, like everyone else.
As a little girl I used to have nightmares about losing my hair, I would wake up and think, oh it was just a dream, thank god. Now it's the opposite, I have dreams about having hair, then I wake up and look in the mirror, and think ugh it's reality.

Im not sure about this, but I think women with Androgenetic Alopecia seem to be dealing with a lot of other health issues. I hope I'm wrong, because looking in my future is already pretty depressing.

I used to get a lot of compliments about my hair before my male pattern baldness struck. Now with hair loss, everyday is a bad hair day, it's so frustrating. I actually do have memories that when I was a little boy, I thought to myself that one of the worst things that could happen to me was to have male pattern baldness strike, and it did happen, at 16 years of age. I was actually diagnosed professionally with premature male pattern baldness and besides that, I'm also having premature greying of the hair on the sides of my head, so that significantly added to the turmoil. It's difficult do deal with these issues at such a young age.

 

[Fena2000]

I used to get a lot of compliments about my hair before my male pattern baldness struck. Now with hair loss, everyday is a bad hair day, it's so frustrating. I actually do have memories that when I was a little boy, I thought to myself that one of the worst things that could happen to me was to have male pattern baldness strike, and it did happen, at 16 years of age. I was actually diagnosed professionally with premature male pattern baldness and besides that, I'm also having premature greying of the hair on the sides of my head, so that significantly added to the turmoil.

Thats horrible at age 16. I can't imagine having to deal with that as a teenager. Genetics are just not fair.

 

[Vim]

Eh, my best friend is waiting deep down for me to go bald because he knows how fvcked up I will look. I guess being slightly better on the dating scene for years in comparison to him has taken its toll. It's sad really, but that's just how people are.

 

[Agustin Araujo]

One of the things that bothers me the most is how much of the general public are uneducated about hair loss. Honestly, can you think of any other medical condition besides alopecia where those who suffer from it are told to just get over it?

 

[Fena2000]

Eh, my best friend is waiting deep down for me to go bald because he knows how fvcked up I will look. I guess being slightly better on the dating scene for years in comparison to him has taken its toll. It's sad really, but that's just how people are.

thats really messed up. At least my friend feels sympathy for me, she's actually saddened by the fact I'm not myself anymore ( she's the only one).

 

[Vim]

One of the things that bothers me the most is how much of the general public are uneducated about hair loss. Honestly, can you think of any other medical condition besides alopecia where those who suffer from it are told to just get over it?

Yeah man you're right. People just don't care about our hair loss as long as it is not them suffering from it. They don't even wanna know why hair loss happens in the first place. They think it's bad diet or washing your hair too frequently. I always feel like being the vanity guy when I mention someone my hair loss because they never ask first. No one cares.

 

[Fena2000]

One of the things that bothers me the most is how much of the general public are uneducated about hair loss. Honestly, can you think of any other medical condition besides alopecia where those who suffer from it are told to just get over it?

I know. And when somebody has cancer , which by no means is 1000 times worse with what we have because you can die from it I know, but if they lose their hair , then everybody feels bad, and some even shave their hair of to show their sympathy. I don't see anybody shave their hair of to sympathize with my hair loss.
Why is it they cry when their hair falls out, while the cancer itself is way worse and upsetting. Because it's distressing to see your hair fall out. It's psychologically hard to see your body changing in a way that's not socially accepted.

 

[shookwun]

I was 16 when somebody told me I had a receeding hairline. By 18 I was a NW2, and it hasn't progressed further in five years. Funny how male pattern baldness works


it was extremely agressive at first. I remember how it happened like it was yesterday. My hair was extremely greasy followed by the itch... then bam it took it over.


Fast forward at 22 I got a hairtransplant, and at 23 (now) I have a full head of hair.

 

[Vim]

I was 16 when somebody told me I had a receeding hairline. By 18 I was a NW2, and it hasn't progressed further in five years. Funny how male pattern baldness works


it was extremely agressive at first. I remember how it happened like it was yesterday. My hair was extremely greasy followed by the itch... then bam it took it over.


Fast forward at 22 I got a hairtransplant, and at 23 (now) I have a full head of hair.

I am 24 and my hair loss has just recently started. You give me some hope it will stop by itself someday. Please God..cmon man:innocent:

 

[swingline747]

I am 24 and my hair loss has just recently started. You give me some hope it will stop by itself someday. Please God..cmon man:innocent:

That's when mine really hit...... Good luck, lord knows I had none

 

[Agustin Araujo]

Yeah man you're right. People just don't care about our hair loss as long as it is not them suffering from it. They don't even wanna know why hair loss happens in the first place. They think it's bad diet or washing your hair too frequently. I always feel like being the vanity guy when I mention someone my hair loss because they never ask first. No one cares.

I do feel like I get scrutinized as the vanity guy when I talk to people about my hair loss. Honestly, too many people aren't educated about hair loss and really don't care about it either. Too many people are also probably ignorant about it to the point where they think we decided to go for the hair style where we're thinning on purpose as if it's something we think is super cool that we wanted to go for by our choice.

 

[lkm370]

im currently out of the deep depression stage of my hair loss. For my entire life, my hair was such a big part of both my looks and identity. When I began losing it, I totally stopped functioning as a person. But with the anger and depression came an almost resigned acceptance to my reality.

 

[frenchy]

same here, i have a best friend, which i was in an implicit competition my whole life, the first one to get laid the first one to have drive licence,; the first getting a good girldfriend, the first one to be high graduated, the first one to get a job, the best salary, i allways winned...

but somehow he knows he will always be supperior to me with his nw1, and never forget to remind me this regulary, "damn bro you are loosing hair" ...... YEAH I KNOW, IT STARTED 10 YEARS AGO AND YOU WHERE ALREADY HERE NOTICING IT....

 

[Agustin Araujo]

Just because there's other problems than hair loss doesn't mean that it's not important. Too many people that don't suffer from any alopecia don't seem to understand that either.

I agree with FredTheBelgian. Like seriously, where's the respect for alopecia sufferers? Besides hair loss, I honestly cannot think of any other medical condition that people will openly disrespect and not care about.

Our head hair is NOT cosmetic, we need it.

 

[frenchy]

because it's wrongly considered as a physical trait and not as a medical condition

 

[EvilLocks]

I understand how you feel Fena, I'm a girl to losing my hair. It's a never ending nightmare and I hate every miserable second of it

 

[2bald2young]

I know. And when somebody has cancer , which by no means is 1000 times worse with what we have because you can die from it I know, but if they lose their hair , then everybody feels bad, and some even shave their hair of to show their sympathy. I don't see anybody shave their hair of to sympathize with my hair loss.
Why is it they cry when their hair falls out, while the cancer itself is way worse and upsetting. Because it's distressing to see your hair fall out. It's psychologically hard to see your body changing in a way that's not socially accepted.

Idk if I say this because of what happened today, but honestly after knowing what I know now I actually prefer dying of cancer when I was 12 and a half then to go through all that happened and will happen in the future starting at that age.

 

[hellouser]

I agree with FredTheBelgian. Like seriously, where's the respect for alopecia sufferers? Besides hair loss, I honestly cannot think of any other medical condition that people will openly disrespect and not care about.

Notice that only men with hair loss are treated like trash... women with hair loss are given sympathy.