I don't think i have a normal case of MBP, or at least i don't think that's the whole problem.
Every single treatment ive tried has not worked, or it's worked SO poorly it wasn't worth continuing.
The reason i dont think my case is normal is:
my hair isn't just falling out, then growing back a bit finer, a full strand of hair (thick, at least 15 cm long, and cut, so not tapered) can fall out, and then grow back at a tiny vellus hair, there is no middle ground, no progress, just instant death. Now at that rate i should be bald completely by now but im not, because this does not seem to be the case with every hair.
Secondly, my hair changes colour alot, i naturally have a medium brown hair colour, used to dye it black, but last time i did that was 2 years ago, so i know there is no dyed hair on my head. Some hairs will grow back really fine, but are pitch black, nearly every strand of my hair when it falls out, seems to transition rapidly (and randomly, not in this order) between black, brown, and transparent (not grey, but completely clear). Nearly every hair ends in this transparent state, and it's not like they are thin hairs, even my thick still healthy hair (before it falls and dies ofc) goes transparent, i can run these hairs across the back of my hand and see them change colour, when it gets to the transparent bits of the hair, i cant even see it, despite the fact that this is the case even with thick hairs.
At the beginning of 2010 it wasn't SO bad, at least not like it is now. But about half way through February, within the space of 2 weeks or so, i lost nearly 50% of my hair, i went from thinning just on the top and slightly around the hairline to thinning all over, to all over thinning, and even more so around the typical area you would loose hair, i used to have next to no chest hair, and within 3 weeks i was covered with it, all over my back, shoulders, and chest, they grow in really thick and black, and the pigmentation of my arm and leg hair became lighter. Hair started growing over the backs of my hands. Keep in mind i had not changed anything in my life around this time, i put on loads of fat around my belly, got man boobs (which despite improved diet, and hours of exercise per day, after weeks i still couldn't get rid of them). the pores in the skin on my face became much more visible, and my skin went from soft, young skin to old man, wrinkly and dry skin, even the colour of my facial hair varies between brown and transparent, just not black (unlike with my head hair).
I started feeling weak, fatigued, and shaking all the time, and this still happens today, i can sleep too little, the right amount, or too much and when i wake up im so tired i could (and do) just go straight back to sleep for like, 8 hours.
around about the same time, my kidneys used to burn and ache, 24/7, i had a stinging pain in my liver, and a weird 'lump', for a lack of a better word, in my bowls that i could feel.
keep in mind, all of this happened within the space of about 2-3 weeks of all of this starting..... such an extreme change in such a short period of time seems wierd, i know ur metabolism slows as u get older, but going from full pelt to the equivalent of an old mans metabolism in what must have been days seems strange.
after about 8 months the liver and kidney pain started to fade, and by the start of 2011, it was more or less gone, although it does still happen some days for no aparant reason. The pain in my bowels finished fading away about a month later, but i can feel it every time the 'poop' passes that point, all around that area i can feel stuff moving through my guts really vividly, unlike the rest of my digestive system, and poop seems to `back up` at this point, i can feel it there for days before it finally `comes out`.
Anyway, ive seen several doctors at several surgeries and not a single one has helped me, they take one look at me, dont run any tests, no checks, nothing, and just tell me "get over it, its all in your head, deal with it and move on", or "just do a bit more exercise", and "the kidney, liver and bowl pain is perfectly normal, nothing to worry about". I ask for specific blood tests, complain about serious symptoms and the best response ive had is "We wont do these tests, because it's a waste of the NHS's money, and im sure your perfectly fine".... The only medication ive received at all has been something to stop heartburn, which isnt even a symptom, and all those pills did is flare up the pain in my kidneys and liver again (which i told them, and they just didn't acknowledged it, let alone even bother writing it down)
So there is no chance of help from doctors etc.... i have no idea what's goin on, and now im left in the position where ive requested a copy of my medical history, and i'll just have to treat it myself.
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Psychologically, it's destroyed me, i used to be a lively, youthful, fun loving person, whereas now i have no friends, no family, im pissed off all the time, i *hate* having to deal with anyone face to face, im bitter, become insanely shallow, aggressive, and nothing of the person that i was.
Ive completely given up on all my dreams and passions, and the only thing i do 24/7 is work on things which i plan to make alot of money out of, not for the sake of being a successful person, but so i can buy a house in the middle of nowhere, and just lock myself away for the rest of my life.
Ive lost all interest in women, in fact, i'd go as far as to say i genuinely hate most them, and i mean a very real hate, that you can feel come from the pit of ur stomach, sort of hate..... and i know it's completely un-justified, ive never even so much as spoken to these people, but it's like an instant reaction, and the only thing i can base it on is over the past 4 years women have done *nothing* but cause me pain.
Ive completely cut ties with my family, and my friends, and changed my job from a stable high income to a shakey, not so reliable income, just so i can work at home because i can't stand to be around people any more, im 23 years old and never, not once in my life have i seen a bald dude the same age as me, my hair problem just screams that i have significant genetic deficiencies, and that im a useless, un-viril male.
ive stopped going out drinking on the weekends, and instead just sit at home on my own with a bottle of vodka, get trashed, and sleep all through Saturday.
this has a huge impact on my life, and all of it started after the start of 2010, and the doctors (who are paid for by OUR taxes here in england btw), just don't care, wont help, and are simply not interested in what i have to say, and this fact they make very clear.
I honestly dont know what to do now, ive already accepted the rest of my life will be a miserable train wreck, and that things will NOT get better, but im sure the hair thing isnt `just in my head`, as those incompetent, negligent c**** seem to believe. ive gone through a substantial physical / chemical change, and it does not show any sign of improving, yet i cant get any help or medicine or even just a doctor to let their egotistical pride go 5 minutes of his time, and just listen to what i have to say, and run a few blood tests.
over the past 4 years ive paid something like just under 18k in national insurance, yet a few blood tests are a `waste of money`, the fuckin cheek of it, i think they've made a disgusting amount of profit out of me, and when i finally go to use what that money was for, they just sh*t on me and kick me out the door
Does anyone have any insight or opinions in regards to the hair situation, because i don't think it's normal, and the extra weight, kidney,liver,and bowel pain, skin, fatigue, etc... im convinced is related as all of it happened around the same time (2 weeks difference at the most).
What can i do from here, where do i go, and what should i be looking into, and what drugs if any may help? im obviously going to have to attempt to medicate and fix myself, and im not askin for someone to say "take this" then i go out, with the intention to get my hands on it and start dropping it, but if you can say "this drug because of x,y,z and this is how it works" then i can go and research it, research what it's used to cure, and try to cross reference my research with symptoms etc.. that i have so i can get a better understanding of what's going on.
Every single treatment ive tried has not worked, or it's worked SO poorly it wasn't worth continuing.
The reason i dont think my case is normal is:
my hair isn't just falling out, then growing back a bit finer, a full strand of hair (thick, at least 15 cm long, and cut, so not tapered) can fall out, and then grow back at a tiny vellus hair, there is no middle ground, no progress, just instant death. Now at that rate i should be bald completely by now but im not, because this does not seem to be the case with every hair.
Secondly, my hair changes colour alot, i naturally have a medium brown hair colour, used to dye it black, but last time i did that was 2 years ago, so i know there is no dyed hair on my head. Some hairs will grow back really fine, but are pitch black, nearly every strand of my hair when it falls out, seems to transition rapidly (and randomly, not in this order) between black, brown, and transparent (not grey, but completely clear). Nearly every hair ends in this transparent state, and it's not like they are thin hairs, even my thick still healthy hair (before it falls and dies ofc) goes transparent, i can run these hairs across the back of my hand and see them change colour, when it gets to the transparent bits of the hair, i cant even see it, despite the fact that this is the case even with thick hairs.
At the beginning of 2010 it wasn't SO bad, at least not like it is now. But about half way through February, within the space of 2 weeks or so, i lost nearly 50% of my hair, i went from thinning just on the top and slightly around the hairline to thinning all over, to all over thinning, and even more so around the typical area you would loose hair, i used to have next to no chest hair, and within 3 weeks i was covered with it, all over my back, shoulders, and chest, they grow in really thick and black, and the pigmentation of my arm and leg hair became lighter. Hair started growing over the backs of my hands. Keep in mind i had not changed anything in my life around this time, i put on loads of fat around my belly, got man boobs (which despite improved diet, and hours of exercise per day, after weeks i still couldn't get rid of them). the pores in the skin on my face became much more visible, and my skin went from soft, young skin to old man, wrinkly and dry skin, even the colour of my facial hair varies between brown and transparent, just not black (unlike with my head hair).
I started feeling weak, fatigued, and shaking all the time, and this still happens today, i can sleep too little, the right amount, or too much and when i wake up im so tired i could (and do) just go straight back to sleep for like, 8 hours.
around about the same time, my kidneys used to burn and ache, 24/7, i had a stinging pain in my liver, and a weird 'lump', for a lack of a better word, in my bowls that i could feel.
keep in mind, all of this happened within the space of about 2-3 weeks of all of this starting..... such an extreme change in such a short period of time seems wierd, i know ur metabolism slows as u get older, but going from full pelt to the equivalent of an old mans metabolism in what must have been days seems strange.
after about 8 months the liver and kidney pain started to fade, and by the start of 2011, it was more or less gone, although it does still happen some days for no aparant reason. The pain in my bowels finished fading away about a month later, but i can feel it every time the 'poop' passes that point, all around that area i can feel stuff moving through my guts really vividly, unlike the rest of my digestive system, and poop seems to `back up` at this point, i can feel it there for days before it finally `comes out`.
Anyway, ive seen several doctors at several surgeries and not a single one has helped me, they take one look at me, dont run any tests, no checks, nothing, and just tell me "get over it, its all in your head, deal with it and move on", or "just do a bit more exercise", and "the kidney, liver and bowl pain is perfectly normal, nothing to worry about". I ask for specific blood tests, complain about serious symptoms and the best response ive had is "We wont do these tests, because it's a waste of the NHS's money, and im sure your perfectly fine".... The only medication ive received at all has been something to stop heartburn, which isnt even a symptom, and all those pills did is flare up the pain in my kidneys and liver again (which i told them, and they just didn't acknowledged it, let alone even bother writing it down)
So there is no chance of help from doctors etc.... i have no idea what's goin on, and now im left in the position where ive requested a copy of my medical history, and i'll just have to treat it myself.
-----------------------
Psychologically, it's destroyed me, i used to be a lively, youthful, fun loving person, whereas now i have no friends, no family, im pissed off all the time, i *hate* having to deal with anyone face to face, im bitter, become insanely shallow, aggressive, and nothing of the person that i was.
Ive completely given up on all my dreams and passions, and the only thing i do 24/7 is work on things which i plan to make alot of money out of, not for the sake of being a successful person, but so i can buy a house in the middle of nowhere, and just lock myself away for the rest of my life.
Ive lost all interest in women, in fact, i'd go as far as to say i genuinely hate most them, and i mean a very real hate, that you can feel come from the pit of ur stomach, sort of hate..... and i know it's completely un-justified, ive never even so much as spoken to these people, but it's like an instant reaction, and the only thing i can base it on is over the past 4 years women have done *nothing* but cause me pain.
Ive completely cut ties with my family, and my friends, and changed my job from a stable high income to a shakey, not so reliable income, just so i can work at home because i can't stand to be around people any more, im 23 years old and never, not once in my life have i seen a bald dude the same age as me, my hair problem just screams that i have significant genetic deficiencies, and that im a useless, un-viril male.
ive stopped going out drinking on the weekends, and instead just sit at home on my own with a bottle of vodka, get trashed, and sleep all through Saturday.
this has a huge impact on my life, and all of it started after the start of 2010, and the doctors (who are paid for by OUR taxes here in england btw), just don't care, wont help, and are simply not interested in what i have to say, and this fact they make very clear.
I honestly dont know what to do now, ive already accepted the rest of my life will be a miserable train wreck, and that things will NOT get better, but im sure the hair thing isnt `just in my head`, as those incompetent, negligent c**** seem to believe. ive gone through a substantial physical / chemical change, and it does not show any sign of improving, yet i cant get any help or medicine or even just a doctor to let their egotistical pride go 5 minutes of his time, and just listen to what i have to say, and run a few blood tests.
over the past 4 years ive paid something like just under 18k in national insurance, yet a few blood tests are a `waste of money`, the fuckin cheek of it, i think they've made a disgusting amount of profit out of me, and when i finally go to use what that money was for, they just sh*t on me and kick me out the door
Does anyone have any insight or opinions in regards to the hair situation, because i don't think it's normal, and the extra weight, kidney,liver,and bowel pain, skin, fatigue, etc... im convinced is related as all of it happened around the same time (2 weeks difference at the most).
What can i do from here, where do i go, and what should i be looking into, and what drugs if any may help? im obviously going to have to attempt to medicate and fix myself, and im not askin for someone to say "take this" then i go out, with the intention to get my hands on it and start dropping it, but if you can say "this drug because of x,y,z and this is how it works" then i can go and research it, research what it's used to cure, and try to cross reference my research with symptoms etc.. that i have so i can get a better understanding of what's going on.
